There have been very few times in my life where I have found
myself to be speechless. Don’t get me
wrong, there have been plenty of times that I have been voluntarily quiet
ranging in reasons from not wanting to sound uneducated on an issue to just not
feeling much like speaking at the time.
But this past Tuesday I got an email and a phone call that rendered me
just absolutely speechless. I got an
urgent email from Molly McElwee, R.N. (who I know from the inpatient trials
that I did last month) saying that I needed to call her RIGHT AWAY about the outpatient
cell phone trials. I think we can all probably guess by my
reaction to having the opportunity to just hold the Artificial Pancreas on a
cell phone platform that when I got this email I was beyond excited to hear any
news, since the FDA very recently approved outpatient trials in the United
States (you can read all about it at http://www.jdrf.org/index.cfm?page_id=117007).
And then it happened. I was given a set of dates in May, asked if I
could do it, AND I WAS IN! I have the once in a lifetime amazing, incredible and
awesome (yes, all of those) opportunity to participate in the very first
outpatient Artificial Pancreas Project clinical trials in the US!!! I honestly
didn’t have words for the excitement and gratitude and hope that I was feeling.
I got off the phone and I cried. I just
cried, for probably a solid 5 minutes before I pulled myself together enough to
call my fiancé, my mom, my dad and my sister.
I can’t even sit here and type this without crying thinking about how
incredible this is that the outpatient trials are already beginning! And how I
am so, SO fortunate to be able to be a part of it.
About once every week I check the government website for
clinical trials pertaining to the Artificial Pancreas, just to see what’s out
there and what I’m eligible for to help out with the Artificial Pancreas Project
in any way I can. Early last week I saw what I thought might have been this
outpatient trial, and emailed Molly, asking if the trial was actually what I
thought it was, and I was hoping to hear some good news about how much progress
the trials are making but not in my wildest dreams did I expect to be given
dates for the trials to happen just 3 weeks from now.
I’m scheduled to check-in at the hotel where
this is all taking place on May 15th, just 2 days after I graduate
with my BA in Psychology from American University. Having taken a non-traditional path through
my schooling, and finally getting my degree 10 years after graduating from high
school, I was already feeling pretty good about graduating. But this, the opportunity to once again be a
part of something that is so much bigger than anything I’ve done before is by
far the best graduation gift I could ever have hoped for.
Lesley, I am very happy for you!!! This is a wonderful opportunity for you, and for all of us. I hope your outpatient participation will go well, and we can all learn from it. I am looking forward to your next blog.
ReplyDeleteHello Lesley! I am thinking of you and sending positive thoughts and a big " Way to GO " for participating in this ground breaking outpatient trial. Send Molly and the UVA team my best. And check out my latest trip to UVA at www.werthecure.com.
ReplyDeleteLook forward to reading your next blog! Mike